News

We are pleased to share the articles recently published in the local press, a valuable relay to raise awareness about rare diseases and to give visibility to the actions of our association. Thanks to the press correspondents of the...

A magnificent show of solidarity, kindness, and humanity shared together at the Garennes stadium this sunday, december 7 ! It was a very emotional sharing and we were deeply moved by your expressions of support. A big SHOUT OUT to the FC Louet-Juignéen who organized this superb match, to Claire Supiot, to all the parents who baked (delicious) cakes, to everyone who came to cheer on and support HAPPY BENJI : forward, walk ! and to the players who gave their all on the field. Our struggle is no longer a solitary one, but a solidarity one.

From Benjamin's early testing, we see the effectiveness of these innovative therapies and are convinced that we must continue to care. The progress is obvious if we compare the 2024 videos with those, a year earlier !

Last year, we flew 7000 thousands miles away from our French house to have therapy for 3 weeks in GLORY THERAPY. We met a great team and an incredibly talented man named Karl Kaufman who changed...

« The only way to realize the impossible is to believe that it is possible ». Today, June 12, 2024, Benjamin realized the impossible by walking 1000.65 feet in a row !!! He took short breaks but got up and walked for an hour !!! Only 3 months after the...

👏 After two and a half months of therapy, Benjamin is proud to show us how much progress he has made!!! He is now able to walk with help, heading to the places he wants to go. Guidance is done by maintaining a resistance band that...

Come on Benjamin!!! Motivation with a smile as always!!! Benjamin loves this colorful painting and likes to stop in front of it every time. In case nobody told you today, hello, nice to see you, you're in your place here, you're doing very well, we...

Today, May 15, 2024, first outing with a walker. Benjamin must manage his environment, soil differences, wind, sun...🌈 BRAVOOOOOO

For the first time since the beginning of therapy, Benjamin managed to stand and move a few steps while leaving his hands on the handles of the « walker ». It is just unbelievable to carry out these 3 actions separately and even more...

Today 11 April 2024 is an EXCEPTIONAL day because Benjamin engaged the reflex of walking, a reflex that infants have at their birth and that is tested after a few days of life. The aim is to test the vertical holding of the newborn in such a way as to...

Today, 28 March 2024 Benjamin is testing new equipment: the Nimbo! This walker is wider and more stable but it is also heavier to push. Benjamin is faced with several challenges: to accept to lay his hands on the handles (he feels like...

It is composed of a vest, shorts, knee pads and wrestles, gloves, shoe fasteners and hat if necessary. All these pieces are interlocked by elastic cords. These cords help to align the body and...

We begin therapy with a quick start to walk so that Benjamin's brain records the imbalance due to the speed of the steps and that it can gradually put in place a strategy of rebalance to activate the reflex of the...

Today, March 14, 2024, after 2 weeks of therapy, Benjamin discovers a new walker who works differently in walking and balance. Refusal to lay hands on handles and attempts to sit down but Benjamin's favorite song « DON'T...

Like a fighter, Benjamin wears his outfit to test both his balance, walking movements and sensory information given by elastics tensed at the joints. It's not painful, we tested it in adult combination...