The only way to achieve the impossible is to believe it is possible.
Forward, walk !
A child unlike any other... but like any other, a child !
Benjamin is the only child in France with a rare genetic disorder linked to a mutation in the KIF5C gene. Our association's goals are to help him walk and gain a better quality of life, while promoting the KIF5C mutation for international medical research.
Today, only about 30 cases are identified in the world.
Patients in the world
(zoomer/click icons to display number of cases)
France
1 patient
Germany
3 patients
Luxembourg
1 patient
Spain
1 patient
Italy
2 patients
Norway
1 patient
Poland
3 patients
Argentina
1 patient
Brazil
3 patients
India
1 patient
Pakistan
1 patient
Russia
1 patient
Japan
1 patient
Vietnam
1 patient
United States
11 patients
United Kingdom
6 patients
Fundraising
Help us to raise funds !
Costs related to Benjamin's medical care in a clinic in Louisiana.
Intensive care in Louisiana
Expenses related to Benjamin's stay for several months in a clinic in Louisiana (therapy adapted to his genetic disorder).
Forward, walk !
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